%0 Journal Article %@ 2562-0959 %I JMIR Publications %V 4 %N 1 %P e24737 %T Risks and Benefits of Using Social Media in Dermatology: Cross-sectional Questionnaire Study %A Bressler,Moshe Y %A Grudnikoff,Eugene %A Bressler,Yaakov %A Tamez,Rebecca %A Zampella,John G %+ Ronald O Perelman Department of Dermatology, New York University, 555 Madison Ave, 4th Floor, New York, NY, 10022, United States, 1 646 754 2000, John.zampella@nyulangone.org %K social media %K dermatologist %K generational differences %K Instagram %K Facebook %K information quality %K patient education %K online content %K risk %K benefit %K dermatology %K cross-sectional %K survey %K online health information %D 2021 %7 24.2.2021 %9 Original Paper %J JMIR Dermatol %G English %X Background: Dermatological information on social media is often presented by nondermatologists. Increasing the online engagement of trained dermatologists may improve information quality, patient education, and care. Objective: Our study assesses dermatologists’ perceptions of social media and patterns of use to identify barriers limiting engagement. Methods: In our cohort study, a 36-item online survey was distributed to dermatologists in the United States; responses were captured on a 1-100 sliding scale. Results: Of 166 initiated surveys, 128 valid responses were submitted. Dermatologists showed greater concern for social media risk-related issues (mean 77.9, SD 15.1) than potential benefits (mean 61.8, SD 16.4; P<.001). Leading concerns were poor patient care, nonevidence-based information, and breaching patient privacy. Benefits included interphysician collaboration, patient education, and public health awareness. The most avid and enthusiastic social media users were millennials (mean total optimism score 67.5, SD 14.9) and baby boomers (mean total optimism score 63.1, SD 11.2) compared with Generation X dermatologists (mean total optimism score 52.2, SD 16.3, P<.001). Of 128 dermatologists, 103 (82.4%) plan on increasing their social media use (P=.003). Predictors showing an intent to increase future social media use were younger age, integration into professional use, and an optimistic view (r2=.39; P<.001). Conclusions: Dermatologists perceive the risk of social media to be considerable but still intend to increase its use, likely recognizing the value and importance of social media to the field. %R 10.2196/24737 %U https://derma.jmir.org/2021/1/e24737 %U https://doi.org/10.2196/24737 %0 Journal Article %@ 1929-0748 %I JMIR Publications %V 10 %N 2 %P e13731 %T Perspectives Toward Seeking Treatment Among Patients With Psoriasis: Protocol for a Twitter Content Analysis %A Reuter,Katja %A Lee,Delphine %+ Department of Public Health and Preventive Medicine, SUNY Upstate Medical University, 766 Irving Avenue, Syracuse, NY, 13210, United States, 1 315 464 1520, reuterk@upstate.edu %K infodemiology %K infoveillance %K internet %K surveillance %K patient opinion %K psoriasis, treatment %K Twitter %K social media %K social network %D 2021 %7 18.2.2021 %9 Protocol %J JMIR Res Protoc %G English %X Background: Psoriasis is an autoimmune disease estimated to affect more than 6 million adults in the United States. It poses a significant public health problem and contributes to rising health care costs, affecting people’s quality of life and ability to work. Previous research showed that nontreatment and undertreatment of patients with psoriasis remain a significant problem. Perspectives of patients toward seeking psoriasis treatment are understudied. Social media offers a new data source of user-generated content. Researchers suggested that the social network Twitter may serve as a rich avenue for exploring how patients communicate about their health issues. Objective: The objective of this study is to conduct a content analysis of Twitter posts (in English) published by users in the United States between February 1, 2016, and October 31, 2018, to examine perspectives that potentially influence the treatment decision among patients with psoriasis. Methods: User-generated Twitter posts that include keywords related to psoriasis will be analyzed using text classifiers to identify themes related to the research questions. We will use Symplur Signals, a health care social media analytics platform, to access the Twitter data. We will use descriptive statistics to analyze the data and identify the most prevalent topics in the Twitter content among people with psoriasis. Results: This study is supported by the National Center for Advancing Translational Science through a Clinical and Translational Science Award award. Study approval was obtained from the institutional review board at the University of Southern California. Data extraction and cleaning are complete. For the time period from February 1, 2016, to October 31, 2018, we obtained 95,040 Twitter posts containing terms related to “psoriasis” from users in the United States published in English. After removing duplicates, retweets, and non-English tweets, we found that 75.51% (52,301/69,264) of the psoriasis-related posts were sent by commercial or bot-like accounts, while 16,963 posts were noncommercial and will be included in the analysis to assess the patient perspective. Analysis was completed in Summer 2020. Conclusions: This protocol paper provides a detailed description of a social media research project including the process of data extraction, cleaning, and analysis. It is our goal to contribute to the development of more transparent social media research efforts. Our findings will shed light on whether Twitter provides a promising data source for garnering patient perspective data about psoriasis treatment decisions. The data will also help to determine whether Twitter might serve as a potential outreach platform for raising awareness of psoriasis and treatment options among patients and implementing related health interventions. International Registered Report Identifier (IRRID): DERR1-10.2196/13731 %M 33599620 %R 10.2196/13731 %U http://www.researchprotocols.org/2021/2/e13731/ %U https://doi.org/10.2196/13731 %U http://www.ncbi.nlm.nih.gov/pubmed/33599620 %0 Journal Article %@ 2562-0959 %I JMIR Publications %V 4 %N 1 %P e26200 %T Instagram Content Addressing Pruritic Urticarial Papules and Plaques of Pregnancy: Observational Study %A Payton,Ashley %A Woo,Benjamin K P %+ Department of Psychiatry, Olive View Medical Center, University of California Los Angeles Medical Center, 14445 Olive View Drive, Cottage H1, Sylmar, CA, 91342, United States, 1 858 243 7816, aapayton16@gmail.com %K pruritic urticarial papules and plaques of pregnancy %K dermatology %K rash %K pregnancy %K obstetrics %K dermatosis %K Instagram %K social media %K patient education %D 2021 %7 11.2.2021 %9 Original Paper %J JMIR Dermatol %G English %X Background: Pruritic urticarial papules and plaques of pregnancy (PUPPP) is the most commonly diagnosed pregnancy-specific dermatosis. It presents with intense pruritus and can be difficult to manage, which encourages mothers to look to social media for camaraderie and advice. Objective: This study aimed to characterize the sources and thematic content of Instagram posts in order to define influential groups of users. Our goal was to determine the status of online discourse surrounding PUPPP and elucidate any potential space for health care provider intervention via creation of Instagram accounts dedicated to information dissemination for patient populations. Methods: Three hashtag categories were selected (#PUPPP, #PUPPPs, and #PUPPPrash), and the top public posts from each were analyzed and organized by source and by thematic content. The numbers of likes and comments were also recorded. Results: Among the top 150 posts in each hashtag category, only 428 posts in total were eligible for this analysis. Majority (316/428, 73.8%) of posts were created by mothers who experienced PUPPP. These posts were testimonial accounts in nature. A small fraction of posts (14/428, 3.3%) were generated by physician accounts. Posts from blogs with extensive followings garnered the most attention in the form of likes and comments. Conclusions: Mothers experiencing PUPPP comprised the majority of accounts posting under the hashtags selected. The most common themes included pictures of the rash and personal testimonies. Posts under blog posts received the most likes and comments on average. There is space for physician and health care specialists to improve their social media presence when it comes to discourse surrounding PUPPP. Patients are seeking out communities on social media, like Instagram, in order to have questions answered and obtain advice on management. Accounts with large followings tend to have more likes and more comments, which encourages information dissemination and awareness. Thus, we suggest that physicians create content and potentially partner with blog-type accounts to improve outreach. %R 10.2196/26200 %U http://derma.jmir.org/2021/1/e26200/ %U https://doi.org/10.2196/26200 %0 Journal Article %@ 2562-0959 %I JMIR Publications %V 4 %N 1 %P e24124 %T Public Interest in a Potentially Harmful, Non–Evidence-Based “Wellness” Practice: Cross-Sectional Analysis of Perineum Sunning %A Ottwell,Ryan %A Hartwell,Micah %A Beswick,Tracy %A Rogers,Taylor Calli %A Ivy,Heather %A Goodman,Marcus %A Vassar,Matt %+ Oklahoma State University Center for Health Sciences, 1111 W 17th Street, Tulsa, OK, 74017, United States, 1 918 582 1972, ryan.ottwell@okstate.edu %K general dermatology %K perineum sunning %K perineum tanning %K skin neoplasm %K public health %K social media %K infodemiology %K public interest %K Google Trends %K Twitter %D 2021 %7 26.1.2021 %9 Original Paper %J JMIR Dermatol %G English %X Background: Perineum sunning/tanning is a potentially harmful yet popular new health trend cultivated by a viral social media post, famous public figures, and subsequent media coverage. Objective: Our primary objective is to evaluate public interest in perineum sunning/tanning. Methods: Using an observational study design, we extracted data from Google Trends for the terms “perineum sunning,” “perineum tanning,” “Metaphysical Meagan,” and “Josh Brolin”; and Twitter (via SproutSocial) for “perineum sunning” and “perineum tanning” from November 1, 2019, to December 31, 2019. UberSuggest was used to investigate monthly search volumes and user engagement. We used data from Google Trends and Twitter to construct autoregressive integrated moving average (ARIMA) models to forecast public interest in perineum sunning and perineum tanning had the post on social media never occurred. Next, we performed an integral function to calculate the cumulative increase in “perineum tanning” from the day after the post occurred to the end of the year as the area between the forecasted values and the actual values. Using Welch t tests, we compared forecasted and actual values for “perineum sunning” and “perineum tanning” using Twitter and Google Trends data over 1-, 2-, and 4-week periods after the social media post to determine if the increased volumes were statistically significant over time. Lastly, we monitored Google Trends for “perineum sunning” and “perineum tanning” through September 30, 2020, to capture trends during the summer months. Results: Before the Instagram post went viral, there was no search interest in perineum sunning. ARIMA modeling for perineum tanning forecasted no increase in searches (0.00) if the post had not gone viral, while actual interest conveyed a relative cumulative increase of 919.00% from the day the post went viral through December 31, 2020. The term “perineum sunning” was mentioned on average 804 (SD 766.1) times daily for this 7-day period, which was also significantly higher than predicted (P≤.03), totaling 5628 tweets for these 7 days. The increased volume of tweets and relative search interest from Google Trends remained significantly higher for both terms over the 1-, 2-, and 4-week intervals. User engagement showed that nearly 50% of people who searched for “perineum sunning” were likely to click a returned link for more information. Continued observance of search interest in perineum sunning demonstrated interest spikes in the summer months, June and July 2020. Conclusions: Google Trends and Twitter data demonstrated that one social media post claiming non–evidence-based health benefits of regular sun exposure—without the use of sunscreen—generated significant public interest. Medical journals, dermatologists, and other health care professionals are obligated to educate and correct public misperceptions about viral wellness trends such as perineum sunning. %R 10.2196/24124 %U http://derma.jmir.org/2021/1/e24124/ %U https://doi.org/10.2196/24124 %0 Journal Article %@ 2562-0959 %I JMIR Publications %V 3 %N 1 %P e23724 %T Assessment of Altmetrics and PlumX Metrics Scoring as Mechanisms to Evaluate the Top 100 Trending Hidradenitis Suppurativa Articles on Social Media: Cross-Sectional Study %A Wei,Chapman %A Fong,Aaron %A Quan,Theodore %A Gupta,Puneet %A Friedman,Adam %+ Department of Dermatology, George Washington University School of Medicine and Health Sciences, 2150 Pennsylvania Avenue, 2B-430, Washington, DC, 20037, United States, 1 202 741 2625, ajfriedman@mfa.gwu.edu %K altmetric %K PlumX %K social media %K impact factor %K hidradenitis suppurativa %D 2020 %7 19.11.2020 %9 Original Paper %J JMIR Dermatol %G English %X Background: Dermatologists are increasingly utilizing social media platforms to disseminate scientific information. New tools, such as altmetrics and PlumX metrics, have been made available to rapidly capture the level of scientific article dissemination across social media platforms. However, no studies have been performed to assess the level of scientific article dissemination across social media regarding hidradenitis suppurativa, a disease that is still currently not well understood. Objective: The aim of our study was to evaluate the utility of altmetrics and PlumX metrics by characterizing the top 100 “trending” hidradenitis suppurativa articles in the altmetric database by the altmetric attention score and PlumX score. Methods: Altmetric data components of the top 100 hidradenitis suppurativa articles were extracted from the altmetric database. Article citation count was found using Web of Science. PlumX field-weighted impact scores for each article were collected from the Scopus database. Journal title, open-access status, article type, and study design of original articles were assessed. Additionally, the altmetric attention score, PlumX score, and citation count were log transformed and adjusted by +1 for linear regression, and Spearman correlation coefficients were utilized to determine correlations. Results: Most of the top 100 “trending” hidradenitis suppurativa articles were published in JAMA Dermatology (n=27, 27%). The median altmetric attention score, PlumX score, and citation count were 25.5, 3.7, and 10.5, respectively. The most mentions regarding social media platforms came from Twitter. Although no correlation was observed between the citation count and altmetric attention score (r2=0.019, P=.17), positive correlation was observed between the citation count and PlumX score (r2=0.469, P<.001). Conclusions: Our research demonstrated that citation count is not correlated with the altmetric attention score, but is strongly correlated with the PlumX score regarding hidradenitis suppurativa articles at this point in time. With the continual increase of social media usage by medical professionals and researchers, this study can help investigators understand the best way to captivate their audience. %R 10.2196/23724 %U http://derma.jmir.org/2020/1/e23724/ %U https://doi.org/10.2196/23724 %0 Journal Article %@ 2562-0959 %I JMIR Publications %V 3 %N 1 %P e13424 %T Understanding Social Media Use and Engagement Among Dermatology Patients to Inform Dermatological Prevention and Care in Vietnam: Cross-sectional Study %A Nguyen,Sau Huu %A Vu,Giang Thu %A Nguyen,Long Hoang %A Nguyen,Cuong Tat %A Le,Thu Hoai Thi %A Tran,Tung Hoang %A Tran,Bach Xuan %A Latkin,Carl A %A Tam,Wilson W S %A Ho,Cyrus S H %A Ho,Roger C M %+ Institute for Preventive Medicine and Public Health, Hanoi Medical University, No 1 Ton That Tung Street, Dong Da District, Hanoi, 100000, Vietnam, 84 982228662, bach.ipmph@gmail.com %K dermatology %K social media %K engagement %K prevention %K Vietnam %D 2020 %7 23.3.2020 %9 Original Paper %J JMIR Dermatol %G English %X Background: Social media has emerged as a common source of dermatological information. Monitoring the patterns of social media use and engagement is important to counteract the limitations of social media. However, evidence in Vietnamese dermatology patients is lacking. Objective: This study aimed to explore social media use and engagement by dermatology patients and to identify factors associated with social media use and engagement. Methods: A cross-sectional study was conducted with 519 participants at the Vietnam National Hospital of Dermatology and Venereology during September to November 2018. Data about sociodemographic characteristics, social media use, and social media engagement were collected. Multivariate logistic and tobit regression models were used to identify factors associated with social media use and engagement. Results: Interest in information about “cosmetic, beauty, and skincare techniques” was the greatest (184/519, 46.2%). The mean engagement score was 8.4 points (SD 2.4 points). Female patients were more likely to use social media (odds ratio [OR] 2.23, 95% CI 1.23-4.06) and be interested dermatological information on social media (OR 3.09, 95% CI 1.35-7.09). Women also had higher social media engagement scores (coefficient=0.68, 95% CI 0.17-1.18). Higher social media engagement scores were related with Instagram use (coefficient=0.58, 95% CI 0.00-1.15) and higher credibility scores for “family members” (coefficient=0.15, 95% CI 0.03-0.26) and “dermatology companies” (coefficient=0.22, 95% CI 0.04-0.39). Conclusions: This study discovered high social media usage among dermatology patients. However, only moderate utilization and credibility levels were reported regarding the use of social media as a source of dermatological information. More efforts should focus on involving dermatologists in the development of individualized information on social media targeting specific groups of dermatology patients. %R 10.2196/13424 %U http://derma.jmir.org/2020/1/e13424/ %U https://doi.org/10.2196/13424