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Thoughts and Experiences of Behçet Disease From Participants on a Reddit Subforum: Qualitative Online Community Analysis

Thoughts and Experiences of Behçet Disease From Participants on a Reddit Subforum: Qualitative Online Community Analysis

Behçet disease (BD) is a type of vasculitis with relapsing episodes and multisystemic clinical features. Symptoms include oral ulcers as well as a range of manifestations that can involve the articular, neurologic, ocular, vascular, gastrointestinal, urogenital, pulmonary, and cardiac systems [1,2]. Although rare, BD affects people from around the world, and it is relatively more common among patients from the Silk Road demographic (including regions in the Middle East and Asia) [1,3].

Jenny Xiaoyu Li, Elaine Yacyshyn

JMIR Form Res 2023;7:e49380

Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study

Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study

The aims of this study were to describe the self-reported clinical features of patients with granulomatosis with polyangiitis and microscopic polyangiitis who participated in the Vasculitis Patient-Powered Research Network and to establish to what extent this internet-based cohort is representative of the general population of patients with these forms of antineutrophil cytoplasmic antibody–associated vasculitis.

Jason Michael Springer, Tanaz A Kermani, Antoine Sreih, Dianne G Shaw, Kalen Young, Cristina M Burroughs, Peter A Merkel

J Med Internet Res 2020;22(7):e17231